Global employees join forces with the MVA Society to raise awareness and support families affected by one of the world’s rarest genetic conditions.
QuickSTAT, a leader in time-critical logistics solutions for the healthcare and life sciences industries, and MVA Society have announced a global fundraising and awareness campaign to support families and advance research into Mosaic Variegated Aneuploidy (MVA) syndrome, an ultra-rare genetic condition with fewer than 50 reported cases worldwide.
With approximately 480 employees globally, QuickSTAT is part of the Quick Group, headquartered in Staines, United Kingdom.
A major milestone in the campaign will be November 19, 2026, the inaugural MVA Awareness Day, organised by MVA Society, the only charity in the world dedicated to supporting families affected by MVA and funding research into the condition. QuickSTAT employees across its international network will mark the day with locally organised fundraising events.
The collaboration brings together QuickSTAT’s global reach and MVA Society’s mission to connect families who may live thousands of miles apart but share the same exceptionally rare diagnosis, while helping fund research into potential treatments.
MVA affects how cells divide and grow, potentially causing developmental differences and an increased risk of certain cancers. For anyone receiving an MVA diagnosis, finding answers can be extraordinarily difficult. With limited research, specialist knowledge scattered internationally and no cure, families can face an uncertain future without a clear pathway to treatment and care.
The Society is also working towards an agreed MVA treatment and support pathway with the NHS, designed to create a clearer route after diagnosis and provide a model that can be adapted internationally.
The campaign also builds on a professional relationship spanning almost 20 years between MVA Society founder Jonathan Bracey and QuickSTAT. Jonathan previously introduced QuickSTAT to Tanner Pharma Group, where he works, and the company now supports Tanner’s work in moving medicines around the world, helping deliver on its mission of “improving patient lives by enabling access to medicines.”
Jonathan Bracey, Founder of MVA Society, said:
“When someone receives a diagnosis as rare as MVA, where do they turn and who has the answers? When there are so few people affected by a condition like MVA, bringing families and researchers together becomes even more important and is often the lifeline they have been looking for.
“I’ve worked with QuickSTAT for almost 20 years and have seen firsthand the difference they can make through their work with Tanner. To now have their support for MVA Society means a great deal to me personally. QuickSTAT is bringing its people together around the world to help us connect ours, and that is incredibly powerful.”
Michael Sweeney, Executive Vice President, QuickSTAT added:
“From the beginning, it was clear that the MVA Society and QuickSTAT share the same vision: putting patients first. This partnership is about turning awareness into action, funding the science that could lead to new treatments, and ensuring that families affected by MVA know they are not alone. The first-ever MVA Awareness Day marks an important milestone in bringing greater visibility, support, and hope to the entire MVA community.”
Jonathan concluded:
“Awareness days are important, but because MVA isn’t something families face for just 24 hours, we welcome this collaboration with QuickSTAT. Our international research conference at Great Ormond Street Hospital in September showed what can be achieved when people come together with a shared purpose. We hope this partnership will build on that momentum, helping us reach more families, advance vital research and make a lasting difference well beyond November 19.”
